This blog was created to keep friends and family up to date on our son's battle with Ewing's Sarcoma. First a little history....
Remington is 9 years old. He has a 5 year old sister and two loving parents, not to mention lots of extended family and friends! On November 21st he was complaining of a burning pain in his armpit and chest area. After seeing a large bulge under his arm pit he was taken to his pediatrician. Dr. Witt sent us up to Primary Children's Hospital for a chest X-ray and CT scan. There was a large mass discovered inside his chest cavity that was the size of a grapefruit. This mass had collapsed his left lung. He was admitted to the hospital that weekend.
Since being admitted he has had several battles. His first was surgery to biopsy the mass under his armpit and get bone marrow samples from his pelvis. They also placed an IV line in a major vein that runs down to his heart so they can give him medicine and treatments. The following day the mass was confirmed to be malignant. He was also given a full body bone scan to make sure the cancer had not spread to any other parts of his body. It has not!!! He started his Chemo treatments on Saturday the 29th. That evening he started suffering from Pulmonary Edema (fluid around his heart and lungs). He was transfered down to the Intensive Care Unit and had a breathing tube placed down his throat and into his lungs. The machines were breathing for him for 4 days. He is now back up on the 4th floor in the ICS wing ( immuno-compromised section). The Chemo causes the white blood cells to drop and he can get sick very easily. All of the children on this floor are in the same situation. We are hoping to get him home soon. We are thankful for the love and support of our friends and family who are helping us in so many ways. This blog will be updated on an "as things change" basis. Thank you and God Bless.
Sunday, December 7, 2008
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2 comments:
I have enjoyed stories from Shylo and Regina about Remi since his beginning. I'm so sorry you are all going through so much heartache right now. You know there is a lot of power in prayer. Know that mine is for you and your family.
Sharen Jorgensen
Thanks so much for keeping us all updated. My whole family's thoughts and prayers are with you and your whole family. God Bless you all.
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